Bioethics experts call on GoFundMe to ban unproven medical treatments

THE VERGE

The authors worry about the spread of medical misinformation

A bioethics study published on December 8th calls on crowdfunding platform GoFundMe to ditch campaigns for unproven and unsafe medical procedures.

People turn to GoFundMe for help paying for all sorts of medical interventions. These campaigns have brought in over $650 million since 2010. But a subset of the money raised is spent on unproven and even illegal operations. Unregulated “stem cell therapies,” for example, attract harsh condemnation from the Food and Drug Administration, and Google even banned ads for the procedures. But the public fundraisers still appear on GoFundMe.

In the new paper, published in the peer-reviewed bioethics journal The Hastings Center Report, the authors argue that GoFundMe enables misinformation that enriches bad actors and can harm patients sick with cancer or other serious conditions. Between November 2017 and November 2018, GoFundMe campaigns raised over $5 million for unregulated neurological stem cell procedures, according to a recent study. Those campaigns were shared over 200,000 times on social media.

“They know this is happening. It can’t happen without their involvement,” says Jeremy Snyder, a bioethics researcher at Simon Fraser University and co-author of the report. “I think they should be ashamed of themselves for taking part in it.”

Read the full story in The Verge

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